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Data to create the National Disability Data Asset (ACT Hospitals)

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DSR-03352

Sharing of Hospitals data originating from the Australian Capital Territory to support creation of the National Disability Data Asset (NDDA)

Parties to the DATA Scheme Data Sharing Agreement
Lead Custodian Additional Custodian/s
Australian Institute of Health and Welfare Australian Bureau Statistics
Lead Requestor Accredited Data Service Provider
Australian Institute of Health and Welfare Australian Bureau of Statistics Australian Bureau of Statistics
Additional Requestors
DSR Number DSR-03352
Project title Sharing of Hospitals data originating from the Australian Capital Territory to support creation of the National Disability Data Asset (NDDA)
Agreement date 2025-02-21
Registration date 2025-02-26
Expiry date
Data sharing purpose

Informing government policy and programs

Research and development

Project description and public interest
statement

This project will bring together data originating from the Australian Capital Territory, supplied by the data provider to the Australian Institute of Health and Welfare (AIHW) under a provisioning agreement, with a subset of the National Linkage Map (NL Map) supplied by the Australian Bureau of Statistics (ABS). The final output of this project, the ACT Hospitals Modules, will be created by the accredited users (ABS and AIHW) for the purposes of the NDDA. The ABS is performing data services as an ADSP to create ADSP-enhanced data, which the accredited users will access to create the final output. ABS, as an accredited user party to this agreement, will be the appointed data custodian of the final output, in order to share the data in subsequent data sharing projects as the NDDA Guardian.

Public Interest Statement

Sharing the specified data will enable the delivery of the NDDA, which is in the public interest. The NDDA will help people with disability, family members and carers, organisations that service people with disability, researchers and governments:

  • access better information;
  • use, design, and deliver better support, services and information; and 
  • collaborate to improve outcomes for people with disability.
Legislation overridden

Census and Statistics Act 1905 (Cth)  

Social Security Administration Act 1999 (Cth)  

A New Tax System (Family Assistance) Administration Act 1999 (Cth)  

Student Assistance Act 1973 (Cth)  

Paid Parental Leave Act 2010 (Cth)  

Health Insurance Act 1973 (Cth)  

National Health Act 1953 (Cth)  

Australian Immunisation Register Act 2015 (Cth) 

Australian Institute of Health and Welfare Act 1987 (Cth) 

National Disability Insurance Scheme Act 2013 (Cth)

Privacy obligation

Not applicable, as this project does not involve sharing of any personal information

Description of shared data

ACT Hospitals Data

These data

  • are person-centred versions of data supplied by the Australian Capital Territory Health Directorate; 
  • have been developed by AIHW in collaboration with states and territories as part of the National Health Data Hub; 
  • will include an NDDA Synthetic Row ID; and, 
  • have a temporal coverage from 2010-11 onwards (where available). 

Subset of National Linkage Map (Hospitals)

The National Linkage Map (NLMap) describes how the National Linkage Spine (NLS) and all the datasets and assets linked to it are connected. The results from linking data to the NLS will produce the NLMap. The NLMap is a concordance of de-identified person IDs that provides pointers to records of an individual across different datasets.

Output

ACT Hospitals Modules

This output contains de-identified unit record data consisting of three modules: 

  1. ACT National Hospital Morbidity Database (ACT_NHMD)
  2. ACT National Non-Admitted Patient Emergency Department Care Database (ACT_NNAPEDCD)
  3. ACT National Non-Admitted Patient (episode-level) Database (ACT_NNAP(el)D)